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Celine Dion reveals her incurable health condition

Celine Dion has revealed she has been diagnosed with Stiff Person Syndrome (SPS), a rare neurological disorder with features of an autoimmune disease.

The French Canadian singer told her 5.2m Instagram followers the condition makes her muscles spasm uncontrollably.

It has also left her with difficulties walking and singing, she said, meaning she will be unable to play planned shows in the UK and Europe next year.

“I’ve been dealing with problems with my health for a long time,” said Dion.

“And it’s been really difficult for me to face these challenges and to talk about everything that I’ve been going through,” the 54-year-old continued in an emotionally-charged video.

“Recently I’ve been diagnosed with a very rare neurological disorder called the stiff person syndrome which affects something like one in a million people.

‘While we’re still learning about this rare condition, we now know this is what’s been causing all of the spasms I’ve been having.”

She added: “Unfortunately, these spasms affect every aspect of my daily life, sometimes causing difficulties when I walk and not allowing me to use my vocal chords to sing the way I’m used to.

“It hurts me to tell you today that this means I won’t be ready to restart my tour in Europe in February.”

 

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A post shared by Céline Dion (@celinedion)

In 2014, the diva – whose ballad My Heart Will Go On, from the Titanic soundtrack, won the Oscar for best song – said she was putting her career on hold “indefinitely” as her husband René Angélil battled cancer.

Although her performances resumed a year later, she stepped away from the stage again in early 2016, following the tragic deaths of both Angélil and her brother, Daniel Dion.

She eventually returned with the 2019 studio album Courage, which featured collaborations with Sia, Sam Smith and David Guetta.

What is Stiff Person Syndrome and is there a cure?

SPS is a very rare condition and not well understood.

According to the National Institute for Neurological Disorders, it is characterised by “fluctuating muscle rigidity in the trunk and limbs and a heightened sensitivity to stimuli such as noise, touch, and emotional distress, which can set off muscle spasms.”

“Abnormal postures, often hunched over and stiffened, are characteristic of the disorder,” they also note.

“People with SPS can be too disabled to walk or move, or they are afraid to leave the house because street noises, such as the sound of a horn, can trigger spasms and falls.

“Most individuals with SPS have frequent falls and because they lack the normal defensive reflexes; injuries can be severe.”

While there is no cure for SPS, there are treatments – including anti-anxiety medicines and muscle relaxants – that can slow down its progression.

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